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K01319 Summary:

BILL NOK01319
 
SAME ASNo Same As
 
SPONSORRules (Perry)
 
COSPNSR
 
MLTSPNSRArroyo, Aubry, Barron, Bichotte, Blake, Cook, Crespo, Davila, De La Rosa, Dickens, Dilan, Espinal, Fernandez, Gantt, Heastie, Hooper, Hunter, Hyndman, Jean-Pierre, Joyner, Kim, Mosley, Niou, Ortiz, Peoples-Stokes, Pichardo, Pretlow, Ramos, Richardson, Rivera, Rodriguez, Rozic, Taylor, Titus, Vanel, Walker, Williams, Wright
 
 
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K01319 Text:

 
Assembly Resolution No. 1319
 
BY: M. of A. Rules (Perry)
 
        MEMORIALIZING Governor Andrew M. Cuomo to proclaim
        June 7, 2018, as Sickle Cell Healthcare Priority Day
        in the State of New York
 
  WHEREAS,  It  is  the  custom  of this Legislative Body to recognize
official days that are  set  aside  to  increase  awareness  of  serious
illnesses that affect the lives of citizens of New York State; and
 
  WHEREAS,  Attendant  to  such  concern,  and in full accord with its
long-standing traditions, this  Legislative  Body  is  justly  proud  to
memorialize Governor Andrew M. Cuomo to proclaim Thursday, June 7, 2018,
as Sickle Cell Healthcare Priority Day in the State of New York; and
 
  WHEREAS,  The  Black,  Puerto  Rican, Hispanic and Asian Caucus will
hold a Sickle Cell forum on this day at the New York State  Capitol,  in
Albany,  New  York, to bring public awareness as well as to elevate this
disease  to  a  healthcare  priority  with  the   assistance   of   both
not-for-profits and advocates across the State of New York; and
 
  WHEREAS,  This vital forum is the first of its kind to come together
to create awareness and bring new accessible medications, with the  hope
of finding a cure for Sickle Cell disease (SCD); and
 
  WHEREAS,  The  first  description  of SCD was by James B. Herrick, a
physician from Chicago, who noted in his  medical  literature  in  1910,
that  a  patient of his from the West Indies had an anemia characterized
by unusual red cells that were "sickle shaped"; and
 
  WHEREAS, SCD is a group of blood disorders typically inherited  from
a person's parents; the most common type is known as sickle-cell anaemia
(SCA)  which  results  in  an abnormality in the oxygen-carrying protein
haemoglobin found in red blood cells and leads to a  rigid,  sickle-like
shape under certain circumstances; and
 
  WHEREAS,  Problems  in  SCD  typically begin around 5 to 6 months of
age; a number of health problems may develop, such as  attacks  of  pain
(sickle-cell  crisis), anemia, swelling in the hands and feet, bacterial
infections, and stroke; and
 
  WHEREAS, SCD affects millions of people throughout the world and  is
particularly  common  among  those whose ancestors came from sub-Saharan
Africa; Spanish-speaking regions in the Western Hemisphere such as South
America, the Caribbean, and Central America; Saudi  Arabia;  India;  and
Mediterranean countries including Turkey, Greece, and Italy; and
 
  WHEREAS,  The  exact  number of people living with SCD in the United
States is unknown; SCD occurs in approximately 1  out  of  every  16,300
Hispanic-American  births;  furthermore,  approximately 1 in 13 Black or
African-American babies is born with sickle cell trait (SCT); and
 
  WHEREAS, Long term pain may develop as  people  get  older  and  the
average life expectancy in the developed world is 40 to 60 years; and
 
  WHEREAS,  It  is  imperative that there be greater awareness of this
serious disease, and more must be  done  to  increase  activity  at  the
local, State and National levels; now, therefore, be it
 
  RESOLVED,  That  this Legislative Body pause in its deliberations to
memorializing Governor Andrew M. Cuomo to  proclaim  June  7,  2018,  as
Sickle  Cell Healthcare Priority Day in the State of New York; and be it
further
 
  RESOLVED, That a copy of this  Resolution,  suitably  engrossed,  be
transmitted  to  The Honorable Andrew M. Cuomo, Governor of the State of
New York.
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