A07807 Summary:

BILL NOA07807A
 
SAME ASSAME AS S05397-A
 
SPONSOREpstein
 
COSPNSRSeawright, Jaffee, Sayegh, McDonough, Ashby, Gottfried
 
MLTSPNSR
 
Amd §2995, add §2997-f-1, Pub Health L
 
Requires that certain information be provided to patients and health care practitioners regarding sudden unexpected death in epilepsy.
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A07807 Actions:

BILL NOA07807A
 
05/23/2019referred to health
01/08/2020referred to health
01/16/2020amend and recommit to health
01/16/2020print number 7807a
01/22/2020reported
01/23/2020advanced to third reading cal.336
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A07807 Committee Votes:

HEALTH Chair:Gottfried DATE:01/22/2020AYE/NAY:25/0 Action: Favorable
GottfriedAyeByrneAye
SchimmingerExcusedMcDonoughAye
GalefAyeGarbarinoAye
DinowitzAyeByrnesAye
CahillAyeAshbyAye
PaulinAyeMillerAye
CymbrowitzAyeSalkaAye
GuntherAye
RosenthalAye
HevesiAye
JaffeeAye
SteckAye
AbinantiAye
BraunsteinAye
KimAye
SolagesAye
BichotteAye
BarronAye
SayeghAye

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A07807 Floor Votes:

There are no votes for this bill in this legislative session.
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A07807 Memo:

NEW YORK STATE ASSEMBLY
MEMORANDUM IN SUPPORT OF LEGISLATION
submitted in accordance with Assembly Rule III, Sec 1(f)
 
BILL NUMBER: A7807A
 
SPONSOR: Epstein
  TITLE OF BILL: An act to amend the public health law, in relation to information provided to patients regarding sudden unexpected death in epilepsy   PURPOSE OR GENERAL IDEA OF BILL: The bill would require health care practitioners to provide patients with epilepsy with current and evidence-based information about SUDEP risk factors and conditions, as well as contact information for nonpro- fit organizations that provide support services for epilepsy conditions.   SUMMARY OF SPECIFIC PROVISIONS: Section 1 of the bill amends section 2995 of the Public Health Law (Structure and definitions) by adding definitions for "health care prac- titioner" and "Sudden unexpected death in epilepsy." Section 2 of the bill adds a new section 2997-f-1 to the Public Health Law (Provision of information relating to sudden unexpected death in epilepsy) to require health care practitioners who are treating patients for epilepsy to provide them with information regarding sudden unex- pected death in epilepsy risk factors and conditions, and with contact information for nonprofit organizations that provide support for epilep- sy conditions. Section 2 also requires the Department of Health to provide culturally and linguistically appropriate written information to health care prac- titioners necessary to implement the above requirement, and to post such information on the Department's website. It would also allow nonprofit organizations to provide the Department with resources and contact information which may also be added to the website. Section 3 of the bill is the effective date.   JUSTIFICATION: According to the Centers for Disease Control (CDC), sudden unexpected death in epilepsy (SUDEP) is the cause of epilepsy-related mortality at an annual rate of 1.16 cases per every 1,000 people with epilepsy. Currently, SUDEP is not widely discussed between doctors and their patients, yet the best way to prevent SUDEP is to reduce the number of seizures suffered by a person with epilepsy as much as possible. To be able to reduce their number of seizures, a person with epilepsy needs to know their triggers for seizures, take their medicine on time, and know the risk factors for SUDEP to better understand and plan for the future. This legislation would require health care practitioners to provide patients they are treating for epilepsy with current and evidence-based information about SUDEP and to connect them with nonprofit organizations that can offer further assistance and support. It would also require the Department of Health to provide information to health care practitioners to assist with compliance and to post such information on its website.   LEGISLATIVE HISTORY: 2019: 5.5397 (Hoylman) - Died in Health   FISCAL IMPLICATIONS: To be determined.   EFFECTIVE DATE: This act shall take effect on the ninetieth day after it shall have become a law.
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A07807 Text:



 
                STATE OF NEW YORK
        ________________________________________________________________________
 
                                         7807--A
 
                               2019-2020 Regular Sessions
 
                   IN ASSEMBLY
 
                                      May 23, 2019
                                       ___________
 
        Introduced  by M. of A. EPSTEIN, SEAWRIGHT, JAFFEE, SAYEGH, McDONOUGH --
          read once and referred to the Committee on Health  --  recommitted  to
          the  Committee on Health in accordance with Assembly Rule 3, sec. 2 --
          committee discharged, bill amended, ordered reprinted as  amended  and
          recommitted to said committee

        AN  ACT  to  amend  the  public  health  law, in relation to information
          provided to patients regarding sudden unexpected death in epilepsy
 
          The People of the State of New York, represented in Senate and  Assem-
        bly, do enact as follows:
 
     1    Section  1.  Subdivision 2 of section 2995 of the public health law is
     2  amended by adding two new paragraphs (f) and (g) to read as follows:
     3    (f) "Health care practitioner" shall mean a physician,  nurse  practi-
     4  tioner,  or  physician assistant licensed or certified pursuant to title
     5  eight of the education law.
     6    (g) "Sudden unexpected death in epilepsy"  shall  mean  sudden,  unex-
     7  pected  death  in  patients with epilepsy, with or without evidence of a
     8  seizure.
     9    § 2. The public health law is amended by adding a new section 2997-f-1
    10  to read as follows:
    11    § 2997-f-1. Provision of information  relating  to  sudden  unexpected
    12  death  in  epilepsy.  1.  Any health care practitioner who is treating a
    13  patient for epilepsy, who has primary responsibility for  the  treatment
    14  and  care of the patient,  shall provide such patient with the following
    15  written information:
    16    (a) current and evidence-based  information  about  sudden  unexpected
    17  death  in epilepsy risk factors and conditions that has been reviewed by
    18  one or more accredited medical experts and national  epilepsy  organiza-
    19  tions; and
    20    (b)  contact  information  for  nonprofit  organizations  that provide
    21  information and support services for epilepsy conditions.
 
         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.
                                                                   LBD11201-06-0

        A. 7807--A                          2
 
     1    2.(a) The commissioner shall provide  written  information  to  health
     2  care  practitioners  necessary  to  implement  subdivision  one  of this
     3  section, and shall post such information on the department's website.
     4    (b)  The commissioner shall ensure that such information is culturally
     5  and linguistically appropriate for all recipients.
     6    (c) Any local or national  organization  that  provides  education  or
     7  services related to epilepsy conditions may request that the commission-
     8  er include such organization's informational material and contact infor-
     9  mation  on  the  department's  website. Once such a request is made, the
    10  commissioner may add the information to the department's website at  his
    11  or her discretion.
    12    §  3.  This  act shall take effect on the ninetieth day after it shall
    13  have become a law.
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