New York State Assembly

 
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A01674 Summary:

A01674 Actions:

A01674 Committee Votes:

Committee:HEALTH   Chair:Paulin      
DATE:01/21/2025AYE/NAY:26/0  Action: Favorable refer to committee Rules        
Paulin
Aye
Jensen
Aye
Dinowitz
Aye
Gandolfo
Aye
Rosenthal
Aye
Blumencranz
Aye
Hevesi
Aye
Gray
Aye
Steck
Aye
Maher
Aye
Braunstein
Aye
Slater
Aye
Solages
Aye
Chludzinski
Aye
Bichotte Hermel
Aye
Norber
Aye
Sayegh
Aye
McDonald
Aye
Reyes
Aye
Gonzalez-Rojas
Aye
Rajkumar
Aye
Forrest
Aye
Kelles
Aye
Lucas
Aye
Meeks
Aye
Lunsford
Aye

Committee:RULES   Chair:Glick      
DATE:01/22/2025AYE/NAY:29/0  Action: Favorable         
Heastie
Excused
Barclay
Aye
Pretlow
Aye
Hawley
Aye
Cook
Aye
Blankenbush
Aye
Glick
Aye
Ra
Aye
Dinowitz
Aye
Brabenec
Aye
Colton
Aye
Palmesano
Aye
Magnarelli
Aye
Reilly
Aye
Paulin
Aye
Smith
Aye
Peoples-Stokes
Aye
Jensen
Aye
Benedetto
Aye
Lavine
Aye
Lupardo
Aye
Braunstein
Aye
Davila
Excused
Hyndman
Aye
Rozic
Aye
Bronson
Aye
Hevesi
Aye
Hunter
Aye
Taylor
Aye
Cruz
Aye
Vanel
Aye

A01674 Floor Votes:

A01674 Memo:

NEW YORK STATE ASSEMBLY
MEMORANDUM IN SUPPORT OF LEGISLATION
 submitted in accordance with Assembly Rule III, Sec 1(f)



 
BILL NUMBER: A1674
 
SPONSOR: McMahon

 
TITLE OF BILL:
 
An act to amend the public health law, in relation to Down syndrome
diagnosis awareness
 
 
PURPOSE:
 
The purpose of this bill is to provide information on Down syndrome to
pregnant woman and parents of infants who test positive for Down
syndrome.
 
 
SUMMARY OF PROVISIONS:
 
This bill would amend the Down syndrome diagnosis awareness program to
provide up-to-date and evidence-based information and be made available
electronically through the department's website. The bill would further
amend the meeting requirements to meet with representatives of the Down
syndrome community as necessary to ensure information is current. This
bill would also extend the effective date to one hundred and eighty days
after its enactment.
 
 
JUSTIFICATION:
 
Screening for Down syndrome is common however many healthcare practi-
tioners are not equipped to provide up-to-date relevant information for
parents. By requiring the Department of Health to develop educational
materials, health care practitioners can be assured they are providing
the best practices and guidelines to assist a family to understand
living with an individual with Down syndrome.
 
To provide accessible information this bill would be amended to allow
the information to be available electronically. Further, representatives
meeting on an as necessary basis allows for information to be updated as
it becomes relevant. The effective date was changed to one hundred and
eighty days to provide the Office with adequate time to assemble
resources and provide information electronically.
 
 
LEGISLATIVE HISTORY:
 
This is a new bill.
 
 
BUDGET IMPLICATIONS:
 
None noted.
 
 
EFFECTIVE DATE:
The act shall take effect immediately; provided, however, that section
one of this act shall take effect on the same date and in the same
manner as a chapter of the laws of 2024 amending the public health law
relating to Down syndrome diagnosis awareness, as proposed in legisla-
tive bills numbers S. 593-A and A. 4138-A, takes effect

A01674 Text:

 
                STATE OF NEW YORK
        ________________________________________________________________________
 
                                          1674
 
                               2025-2026 Regular Sessions
 
                   IN ASSEMBLY
 
                                    January 10, 2025
                                       ___________
 
        Introduced  by M. of A. McMAHON -- read once and referred to the Commit-
          tee on Health
 
        AN ACT to amend the public health law,  in  relation  to  Down  syndrome
          diagnosis awareness
 
          The  People of the State of New York, represented in Senate and Assem-
        bly, do enact as follows:

     1    Section 1. Paragraph (h) of subdivision 1 of section 207 of the public
     2  health law, as added by a chapter of  the  laws  of  2024  amending  the
     3  public  health  law  relating  to  Down syndrome diagnosis awareness, as
     4  proposed in legislative bills numbers S. 593-A and A. 4138-A, is amended
     5  to read as follows:
     6    (h)(i) [A] Down  syndrome  [awareness  program  shall  be  created  to
     7  provide]  including up-to-date and evidence-based information about Down
     8  syndrome, [in a written or alternative format to health  care  providers
     9  who  order  tests  for  a pregnant woman or an infant to screen for Down
    10  syndrome that shall include, but] not [be] limited to[,] the following:
    11    (1) expected physical, developmental,  educational,  and  psychosocial
    12  outcomes;
    13    (2) life expectancy;
    14    (3) the clinical course description;
    15    (4) expected intellectual and functional development;
    16    (5) available intervention or treatment options;
    17    (6) information hotlines specific to Down syndrome;
    18    (7) relevant resource centers or clearinghouses;
    19    (8) national and local Down syndrome organizations; and
    20    (9) any other information the department deems necessary.
    21    Such  information shall be provided electronically through the depart-
    22  ment's website.
    23    (ii) The commissioner shall (1) examine and utilize existing practices
    24  to ensure that the information provided under subparagraph (i)  of  this
    25  paragraph  is  culturally and linguistically appropriate for all recipi-
 
         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.
                                                                   LBD02838-01-5
        A. 1674                             2
 
     1  ents; and  (2)  meet  [annually]  with  representatives  from  the  Down
     2  syndrome community as necessary to ensure such information is current.
     3    §  2.  Section  2 of a chapter of the laws of 2024 amending the public
     4  health law relating to Down syndrome diagnosis awareness, as proposed in
     5  legislative bills numbers S. 593-A and A. 4138-A, is amended to read  as
     6  follows:
     7    §  2.  This  act  shall  take  effect [immediately] on the one hundred
     8  eightieth day after it shall have become a law.
     9    § 3.  This act shall take effect immediately; provided, however,  that
    10  section  one  of  this act shall take effect on the same date and in the
    11  same manner as a chapter of the laws of 2024 amending the public  health
    12  law relating to Down syndrome diagnosis awareness, as proposed in legis-
    13  lative bills numbers S. 593-A and A. 4138-A, takes effect.

A01674 LFIN:

 
NO LFIN

A01674 Chamber Video/Transcript: