Pheffer Amato Celebrates Advocacy and Legislative Success for Those with Cystic Fibrosis

Breezy Point, NY – New York State Assemblywoman Stacey Pheffer Amato presented Breezy Point resident Michael Fox with an official New York State Assembly Proclamation as he was awarded the coveted “Advocate of the Year” by the Cystic Fibrosis Foundation. Michael, and his mother Gretchen, worked with Assemblywoman Pheffer Amato to pass a first-of-its-kind law that provides reimbursement for Cystic Fibrosis (CF) medication. The goal of the bill came to fruition after Michael and Gretchen met with the Assemblywoman to explain that nearly all adult CF medication and treatments are paid out of pocket. Through Pheffer Amato’s legislation, and the advocacy of the Fox Family, that changed for those with CF when A.3089 was signed into law which ensures a reimbursement program for medication. The new program establishes a permanent relief to families and patients, while Pheffer Amato secured an ongoing source of funding through the State budget.

“This legislation directly gives those impacted by CF the resources they need so they can purchase medication, receive care, and live the life they want,” said Assemblywoman Pheffer Amato. “It’s been one of my greatest honors to work with the Fox Family to get this bill over the finish line and create legislation that will save and improve lives. Michael is an exceptional and extraordinary partner, and this bill was passed in his honor due to his fierce advocacy and commitment to helping those with this rare disease. Through this partnership and bill, we are truly saving lives -it’s no wonder he’s advocate of the year,” said the Assemblywoman.

“There are 1,400 New Yorkers diagnosed with this disease, and we are fighting to make sure we all get the resources and attention we need. Through the work of the Cystic Fibrosis Foundation, advocates and their families, and because of amazing legislators like Assemblywoman Pheffer Amato, this program is set to provide the financial stability needed to ensure live-saving medication is available,” said Michael Fox. The Assemblywoman also gave Michael an official signed copy of the bill.

For years Michael Fox has volunteered as an advocate at the State and federal levels, while passionately supporting individuals living with Cystic Fibrosis and other health concerns. Michael was honored earlier this year for his extensive volunteerism to support the Cystic Fibrosis Foundation's research efforts for treatments and a cure for CF. He has been responsible for raising tens of thousands of dollars in donor contributions for this worthy cause.